Including Autism and ADHD diagnosis process
We hold termly listening events for parent carers with CAMHS. The feedback parents have given has helped CAMHS to evidence the need for a new role in their service.
We meet regularly with CAMHS to contribute parent carer voice ‘working together to make things better’.
We are engaging with an expanding Wellbeing in Mind team in York. This team will bring mental health professionals and expertise into schools to support young people’s mental health at an earlier stage.
Head to the Events page to sign up for our next CAMHS Listening Event.
We have worked together with CYC and schools to create a document outlining the type of support that can be expected from all schools and colleges in York for children who struggle at school. This document can be used by parents and schools to open conversations about support for a child.
Ordinarily Available Provision Document
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A new document gives guidelines to schools and parents on how schools can meet the needs of students who are struggling to attend school. This document has been informed by parent voice. Comments on drafts were made by parents at a Listening Event and in meetings, and lived experiences were shared with professionals.
We represented parents and carers at York Attendance Summit. There are a few key projects about to start looking at creating a supportive and neurodivergent friendly culture to enable our young people to attend school. The PCF are involved in these projects to represent your views.
Graduated Pathway to Support Attendance in School
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We have represented Parent Carer voice with City of York Council (CYC) with their work on the Local Offer website.
We were involved in the creation of Raise York - the new family hub approach for any support you might need bringing up children - health, education, social care, financial, wellbeing. Click here to browse this website.
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CYC are currently looking at their audit process for EHCPs and PCF will be involved in this process. In addition PCF have suggested a review of the Annual Review process.
We continue to hold regular Listening Events with legal professionals and SENDIASS on this topic.
You can get advice on EHCPs and Annual Reviews from York's Local Offer, York SENDIASS and IPSEA.
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Our conference in 2023 was themed on wellbeing. Specialists came in to talk to parents on sleep and different wellbeing practices. We provided books on 'The Emotional Wellbeing in Parents of Disabled Children' by Joanna Griffin (psychologist and parent carer) and hope to arrange an online session for parents who were unable to attend the conference. Parents fed back that this conference had really helped their wellbeing and requested more...so watch this space!
We currently offer fortnightly coffee mornings, which are a valuable way to connect and share experiences with those who understand. In addition there is a monthly online cuppa and chat every month for those who may be unable to attend in person socials and who want to connect in this way.
Listening Events will continue to offer opportunities to discuss ways to prioritise and manage your wellbeing.
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We can help with signposting to advice givers and support services who can help with benefits and finances advice.
Our social media and newsletters shares information on local and national news regarding finances, benefits, savings schemes and much more.
Our coffee mornings always offer a free hot drink on us.
We are currently representing parent carer views on a full review of City of York's Preparation for Adulthood Policy and Protocols. Please see the link below for the current Policy and use the Contact Us page to give your feedback. Could you easily find what you were looking for? Were your questions answered?
We also represent your voice at the Supported employment Forum. This group meets regularly to develop employment opportunities for young people with additional needs in York.
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We continue to work closely with York Carers Centre . As a result of our work there is now a pack in every GP surgery, which highlights the need to recognise Parent Carers and signpost them to useful services. Training links for GP staff are also part of the pack indicating the need to recognise carers needs and signpost as appropriate to support services.
Look on our event page for upcoming Listening Events supporting you as a carer.
We are currently part of the project team for the Partnerships for Inclusion of Neurodiversity in Schools (PINS). This project brings health
and education specialists and expert parent carers into mainstream primary
settings to:
• Help shape whole school SEND provision.
• Provide early interventions at a whole school level.
• Upskill school staff.
• Support strengthening of partnerships between schools and parent
carers.
We have held meetings with Maxine Squire, Assistant Director Education and Skills to ensure that parent carers have voiced their concerns regarding changes to provision. CYC have committed to a new full review of teh short breaks provision and PCF will be involved in this process.
Contact Us : have your say on this.
Events Page: more information on this topic